Luna

Recently we took a trip up to the Westmead Children's Hospital to see the Pediatric Orthopedics specialist and get Archie's Perthes'disease checked. We might have done that at home if his specialist hadn't been in the papers all year for serious surgical negligence, recently suspended, with more news coming out a couple of weeks ago of unethical experimental treatment on a nine year old (seriously, what a creep!). Instead we travelle dto Sydney. We spent Saturday catching a bus down to the Rocks and then the Manly Ferry out to the beach. Not that we swam, maybe not that warm, but t-shirt weather. The biggest blessing though is this: Archie's bone has made a full recovery since diagnosis six years ago. The amount of bone growth in the last 18 months has been astounding with complete regrowth of the femoral head and close on the original shape. I guess it shouldn't have been a surprise given how much he has grown in general (and how much he eats!) but at no po...

Last week was my fifth infusion of Intragram . Even though I was told it would get easier  as the months wore on, it hasn't. The days afterwards are still a lot like you'd imagine the after effects of colliding with a Mac truck would be, with at least one day on the bath room tiles surfing waves of nausea. This time around was my kind of weather - a classic hot summer day, the school holidays and the bliss of retreating into a cool, still home afterwards. Archie had had his birthday party the weekend before at "Tunzafun" - little boy heaven with dodgems, laser tag (whatever that is), and unlimited games - and all the presents he'd received from invitees were still strewn over the lounge room floor. He is still spending hours playing blissfully constructing, sorting, building etc.  Before long, with myself parked on the lounge just watching him idly, no thoughts about what I needed to get up and do next, a sense of contentment had come over the room. For the...